My Sweet Evan

My Sweet Evan
On my way from Heaven

God delayed my trip that day

He said that I was special

and then sent me on my way

but not before he kissed my ears

He left his Blessed mark

to carry with me here.

He whispered in my ear right then

that he loved me without a doubt

and then he closed my ears up tight

so the whisper won't get out

-Author Unknown

Friday, May 28, 2010

My baby has a new ear!!!!!!!

Well, if I did not have any patience before God is sure showing me how to be patient now. Evan is up ripping and running like any 3 year old. He does not even seem to know that he has his new ear unless we point it out. We went to the doctor yesterday and part of the ear that we were worried about has healed and worked well. Part of Evan's old ear was used to help build the bottom part of his new ear but that part did not take. Sometimes this happens but it is completely fixable. Evan will have another surgery next Thursday. This will only take about an hour and they will remove the skin that did not work and perform another skin graft. Dr Reinisch and his staff are WONDERFUL. If you are going to be a future patient of theirs you will be very impressed. Despite the bandage changes, Evan was giving Dr Reinisch high fives and telling him 'thank you'. He is such a trooper. I am very blessed to be in Evan's life and walk this journey with him. Although we are VERY homesick and emotionally exhausted I have to look at the whole picture. My baby is getting his ears and life for him will be better. For all of our friends and family out there - WE MISS YOU VERY MUCH AND CAN'T WAIT TO BE HOME!!!!

God is good ALL the time....we just have to wait for his time...

Thursday, May 27, 2010


We go to the doctor today to get Evan's bandages changed and his head washed. They have completely shaved his head so he is not my little Goldilocks :( but willing to give that and everything else up for him to get his new ears. He has been such a trooper during these past couple of weeks. We are sooo homesick and just praying for a good report tomorrow. I will keep everyone posted...As far as LA goes there are lots of things to do and see but nothing is like being at home :)

Thursday, May 20, 2010


Today has been a good day for Evan. We are 2 days out from surgery. We went to the doctor and Evan's drain tubes were removed. He is such a trooper. You honestly would not belive how fast he has recovered. I got a glipse of his ear today and it is very swollen and still has the packing. I still have hope that the vessel will work and the surgery will be a success. Please continue to pray for us. I know the prayers are working because I feel at peace today. Somehow I know that everything will work. I doubted putting Evan through this but God led us here and I know that it was for a reason.
Evan made a new friend today. Luca is a 4 year old from Australia that had surgery about a week before Evan. We met Luca and his family and had ice cream at the Disney Soda Fountain Store. Such a great family and so inspiring to me. If you get a chance you can check out his blog @ It is eerie how similar he and Evan favor. They made our day great and I hope that we made a lasting friendship. Evan was so funny tickling Luca today. I will post pics of them soon. Good night all and say a little prayer. Can't wait to come home .......

Wednesday, May 19, 2010


Prayer is a powerful thing. Especially if we all join together....
Evan's surgery was a little over 11 hours long. It was a very long day for all of us and especially for Evan. We got back to the hotel after midnight. Evan woke up about 4 this morning still groggy from the pain meds they gave him. He is not eating a banana, fruit loops and a muffin for breakfast. Despite his small frame this child can eat!!! Please continue to pray for Evan. Pray that he will have a good day today and will have minimal if no pain. He is such a trooper. The doctor said one of the blood vessels that supplies blood to the new ear was not a good vessel. They worked on it for a long time, trying to warm it. He did get it to pulse but it is still not flowing the way Dr Reinisch would like it to be. Pray for this vessel to flow freely and supply Evan's new ear successfully. Pray for all of us as we continue this journey. Pray for Dr Reinisch as well because I know it was a long day for him as well. Pray hard for Evan to recoup well and for the surgery to be a success. Thanks for the contiuous flow of prayers and thoughts....

Tuesday, May 18, 2010


Here it is 3:10pm in Los Angeles and we are still waiting for Evan to come out of surgery. I have been a emotional wreck all day and for my friends out there I forgot to put my big brave girl panties on. (or if I have them on they are not working). The nurses have been really good about giving updates. Around 12:30 Kay (the nurse) came out and said they had not started the actual procedure. They took Evan back for surgery at 7:30 but the preparation for surgery takes a long time. Thank goodness I brought alot of busy work. We have met some really nice people here as well and I am documenting everything so that Evan will know just how much he was loved. I will keep everyone updated once I get the updates.

Sunday, May 16, 2010

we r here!

yeah! We made it and the traffic was not bad. Hope that once we venture out tomorrow for preop and a trip to the grocery store it will be good. I am soooo nervous about Evan's surgery but know that he is in God's arms. I have so many mixed emotions right now but all of you have helped ease my dreadful thoughts. I will keep you posted... love u all

Saturday, May 15, 2010

Life Story

What is going on in my mind now - only millions of things.. Such as how did May get here so fast? I can believe just 4 months ago I was saying that we would never get the money raised for Evan's ear reconstruction. Here we are leaving in the morning for Los Angeles. :) I am so amazed at God's work and how precious Evan's life story has become. I foolishly questioned God when Evan and Aiden were born 2 months premature and we sat in the NICU unit for about 2 months. I am not going to lie, I actually lost my faith during this time and at times turned my back on the one that was responsible for giving us all life. I am so excited now at how Evan has used God to heal and touch lives that otherwise may not have known HIM or maybe had been drifting - such as myself...I am thankful for not only my friends but the prayer warriors at First Baptist Church that have been so devoted to Evan and my family. I am living my lifestory with Evan and Aiden and now know God had his purpose all along...


It's Here

Just wanted to post a quick note to everyone while I am busy packing. We leave in the morning for Los Angeles. It is finally here..the day I have have been anxiously awaiting and dreading at the same time. I have alot of mixed emotions but know that God's hand has been with us through all of this. My heart is filled with joy because of the way that God has used Evan to touched others. I will post again before we leave. Please keep us in your prayers.

Tuesday, May 4, 2010


We leave in 12 days.... 12 days... Oh did I say that we leave in 12 days? I am very nervous but know that Evan will be well taken care of. God has really worked wonders with us and I know he will not fail us now. For all of you reading this blog - THANK YOU! Please continue to keep us in your prayers. Pray for me having a 3 year old on an airplane with a 3 hour layover in TX - lol. But please don't pray for me to have patience because the LORD will show me just how much patience I have - been there, done that! I will continue to keep everyone updated on this blog and Facebook. You can look us up on Facebook at Earsforevan Holley. Thank you for loving Evan :)