My Sweet Evan

My Sweet Evan
On my way from Heaven

God delayed my trip that day

He said that I was special

and then sent me on my way

but not before he kissed my ears

He left his Blessed mark

to carry with me here.

He whispered in my ear right then

that he loved me without a doubt

and then he closed my ears up tight

so the whisper won't get out

-Author Unknown

Sunday, January 31, 2010

Ears for Evan

For those of you that don't know us, you soon will. I am on a mission and when you have a mother with a mission - well those of you who are mothers- you know how we can get. So.... here's my story.
I tried for 6 years to get pregnant. I was blessed on March 11, 2007 with twin boys. They were born 2 months premature.I will never forget the day my sons were born. My ObGyn doctor was playing the Curious George soundtrack and still to this day I cry when I hear a Jack Johnson song. I had a C-Section and did not get to see my babies for almost 6 hours after the C-Section. I have a large family and they were so great trying to keep my mind occupied by visiting me during this time. When my husband walked in I immediately knew something was wrong by the look on his face. His only words to me were that something was wrong with Evan's ears. I wondered to God why he would let something happen to us because we had been trying for so long to have children. I know now that God always has a plan and Evan was placed with me for the best reasons. You see, I am the type of person who has to fix things immediately and God has simply shown me patience. He has also shown me love, the type of love that is unconditional and I have now experienced that by being a Mom.
My sons were in the NICU unit for about 2 1/2 months. I just knew in my heart that even though Evan's ears were not developed normally that he could hear. We would tap on the incubator and he would respond and this was justification for me that he could hear. I kept this faith until the nurse practitioner delivered the news that he had failed his hearing tests and he was indeed hearing impaired. I have never cried so hard or prayed so hard in my life. I bartered with God alot that day.
Today, I am learning to come to terms with everything and everyday I learn more about Evan and more about myself. My son, Evan was born with bilateral (meaning both sides) microtia and atresia. In simple terms basically he was born with no ear canals or ears. He does have a somewhat misshapen ear on his left side but neither ears are functioning ears. He was born with no middle ear and he has bony plates that block his eardrums. We have a really good team of teachers, doctors and therapists. Without them I don't know what I would do or where we would be. Evan has come a long way but we still have a rocky road to travel. We are in the process of raising money so that he can have his first ear reconstruction and have his BAHA aid surgically implanted. This will be a lengthy process and will be very expensive. I have started planning fundraisers in the hope that his first surgery will be in April of this year.
Evan is almost 3 and will be starting school soon. I am on a mission to try and get his reconstruction done before school. Kids can be so cruel. We actually experienced this at a high school graduation last year. If you have not had the experience of someone making fun of your child I hope you never do. My baby is very independent and does not know he is different. That is the reason I have started this post. I am on a mission. A mission to get Ears for Evan- so he will never have to feel any different from everyone else. I will keep everyone posted on upcoming fundraising events. Please keep us in your prayers.

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