I am a faithful believer in blessings. The blessings you will receive when you give and when you receive. Everyday of my life is a blessing. Words cannot express the gratitude I feel. First of all to God, my Savior, for the blessings he has bestowed upon me. Its funny though that sometimes we think he is not there when the entire time is is listening.... I also want to thank each and every individual who has blessed us. I hope that you know that because of your blessing you have made a great difference in my son, Evan's life. My biggest blessing is being a mother to Evan and Aiden. Evan is so awesome and makes me laugh and want to cry for joy everyday. He is such an independent, spunky and loving little boy. I have started this blog so that each of you will know Evan and the difference you have made. Once you meet him he will forever touch your heart (and not just because he is the cutest little boy you have ever seen - lol.) But because he is Evan - a special child of God, with his own special touch. The News Star interviewed us Sunday. It was a very emotional day for me because I am putting my baby out in the public for everyone to see his differences. I still have mixed emotions about that but you do what you have to for your children. The reporter asked me what Evan likes. I was so nervous and told her he likes Barney, coloring, playing and absolutely loves mandarin oranges. BUT I forgot the most important thing.... When Evan gives you a kiss he loves to hold your face when he kisses you. If your child does this you know that this is the sweetest thing in the world. So when you kiss your child tonight, hold their face and tell them just how much you love them. Count your blessings, just like I do everyday.
Keep Evan in your prayers. Thank you and bless you for everything you have done for us.
Wednesday, February 24, 2010
Thursday, February 18, 2010
Coming To Terms
I have had alot of people ask about Evan's condition. I wanted to include this on the post so that we could spread awareness about Evan.
Evan has Goldenhar Syndrome and Bilateral Microtia/Atresia.
Goldenhar Syndrome or AKA Hemifacial Microsomia is a disorder where the patient has facial features that are incompletely developed on one side resulting in ear, eye and jaw deformities.
Microtia is a congenital deformity of the outer ear. It affects boys more than girls and the right side is the most commonly affected side. It affect 1 in 8000 globally but ranges wildly depending on the ethnic group in question. In our case, it affects 1 in 20,000.
Atresia refers to abscence of the external ear canals. It is most frequently isolated but usually occurs with a syndrome.
Right now, my baby does not realize he is different. We have experienced the stares, comments and other children making fun of his ears. My hope is that we raise awareness and continue spreading the word about "EARS FOR EVAN" so that he will never have to feel that he is different. So if you have read this please become a follower on this post and pass this along to your friends and family.
Evan has Goldenhar Syndrome and Bilateral Microtia/Atresia.
Goldenhar Syndrome or AKA Hemifacial Microsomia is a disorder where the patient has facial features that are incompletely developed on one side resulting in ear, eye and jaw deformities.
Microtia is a congenital deformity of the outer ear. It affects boys more than girls and the right side is the most commonly affected side. It affect 1 in 8000 globally but ranges wildly depending on the ethnic group in question. In our case, it affects 1 in 20,000.
Atresia refers to abscence of the external ear canals. It is most frequently isolated but usually occurs with a syndrome.
Right now, my baby does not realize he is different. We have experienced the stares, comments and other children making fun of his ears. My hope is that we raise awareness and continue spreading the word about "EARS FOR EVAN" so that he will never have to feel that he is different. So if you have read this please become a follower on this post and pass this along to your friends and family.
Tuesday, February 16, 2010
Angels Everywhere
Yesterday was my birthday.
I had a great day because of several special 'angels'. I am going to call them Evan's angels.
Evan has alot of angels and they all worked very hard on a benefit for him this past weekend. The benefit went very well and I will forever be grateful to everyone that helped. I also received an generous donation for Evan's surgery. The sweetest thing is getting donation from a child's piggy bank - thank you, Carli!!!! You see there are angels everywhere you just have to look for them.
Don't Forget - Rummage/Bake/Hot Dog Sale @ LabCorp in West Monroe on March 6th.
Labcorp is located on Circle Drive by AUTOZONE. If anyone would like to donate items or baked goods please call me @ 318-512-3078.
PLEASE HELP US GET EARS FOR EVAN!!!!!
THANKS FOR ALL OF YOUR LOVE, PRAYERS AND SUPPORT :)
I had a great day because of several special 'angels'. I am going to call them Evan's angels.
Evan has alot of angels and they all worked very hard on a benefit for him this past weekend. The benefit went very well and I will forever be grateful to everyone that helped. I also received an generous donation for Evan's surgery. The sweetest thing is getting donation from a child's piggy bank - thank you, Carli!!!! You see there are angels everywhere you just have to look for them.
Don't Forget - Rummage/Bake/Hot Dog Sale @ LabCorp in West Monroe on March 6th.
Labcorp is located on Circle Drive by AUTOZONE. If anyone would like to donate items or baked goods please call me @ 318-512-3078.
PLEASE HELP US GET EARS FOR EVAN!!!!!
THANKS FOR ALL OF YOUR LOVE, PRAYERS AND SUPPORT :)
Wednesday, February 3, 2010
Progress
First, I want to thank all my friends and family for helping me get the word out about Evan. This has been a really difficult week because I am now having to face Evan's differences. I am not saying that I have ignored his disability but as they say, I have 'put it on the back shelf'. So...
this week I have been REALLY busy dusting things off....
We have the following fundraisers set up for Evan:
March 6th - Rummage sale @ LabCorp from 6am - till.
We will also sell baked goods and hot dogs. If you would like to help volunteer or donate items please call me @ 318-512-3078
May 1st - We will be selling hamburger plates at WalMart in West Monroe. We will presell tickets for this event also. For those of you that have ever tailgated at any of the West Monroe Rebel Football games and experienced the culinary skills of Ken and Linda Brooks please come see us because they will be cooking for us on this day!
Ladies, Please visit https://www.mythirtyone.com/5543. They have everything from bags, to baskets and bibs. These items can be monogrammed. Linda Brooks is the representative and she is donating 25% of all sales the Evan's medical fund.
I am selling Butter Braids. The come in the following flavors: apple, strawberry cream cheese, cinnamon, cream cheese and bavarian cream with chocolate icing. If you would like to help sell these items please let me know. You can visit butterbraids.com.
Thanks to all of your prayers, hard work and support. We love you.
this week I have been REALLY busy dusting things off....
We have the following fundraisers set up for Evan:
March 6th - Rummage sale @ LabCorp from 6am - till.
We will also sell baked goods and hot dogs. If you would like to help volunteer or donate items please call me @ 318-512-3078
May 1st - We will be selling hamburger plates at WalMart in West Monroe. We will presell tickets for this event also. For those of you that have ever tailgated at any of the West Monroe Rebel Football games and experienced the culinary skills of Ken and Linda Brooks please come see us because they will be cooking for us on this day!
Ladies, Please visit https://www.mythirtyone.com/5543. They have everything from bags, to baskets and bibs. These items can be monogrammed. Linda Brooks is the representative and she is donating 25% of all sales the Evan's medical fund.
I am selling Butter Braids. The come in the following flavors: apple, strawberry cream cheese, cinnamon, cream cheese and bavarian cream with chocolate icing. If you would like to help sell these items please let me know. You can visit butterbraids.com.
Thanks to all of your prayers, hard work and support. We love you.
Monday, February 1, 2010
Patience
Thanks to everyone for all of the prayers for Evan. We have a large financial goal to meet but I have faith that we can do it. I have lots of good friends and a large family that will do everything in their power to help Evan. Evan's first surgery is scheduled on May 17th. They will reconstruct his left ear. I hope that they can do the reconstruction on the left ear in just one surgery. His right ear will probably take 3-4 surgeries. Once they reconstruct his ears they will surgically place the BAHA hearing aid. This will help Evan hear just like you and I do.
The total amount of Evan's surgeries is approximately $80,000.00. This is a round bout figure and the doctors in California that are going to perform the surgeries are currently working with the hospital/anethesiologist/hearing aid company to get us discounts. If it were not for Julie @ Dr Reinisch's office I would probably still be sitting at home crying and wondering how we could get this done. She has been a godsend!
Just last week I was thinking we would never get this done. Over the weekend I had thought of sponsors I would call to get gift cards/raffle items. One of the sponsors on my list was McKinney Honda. I went to work on Monday depressed and wondering just how I would ever do this. One of the people I met on Monday worked at McKinney Honda. TALK ABOUT A GOD THING. We talked and she has contacted me to offer help throughout the week. I cannot express the gratitude that I have. I went to lunch and was sitting in the parking lot thinking "ok God, if this is going to happen I will let it, but I need help." Julie from Dr Reinisch's office called ( I have not spoken to her in several months) and said she still had Evan scheduled for surgery in April. I explained to Julie that we did not have the money and I just got internet service so I could start researching programs to help with the expenses. She would not take no for an answer and said she would call me back in March. TALK ABOUT A GOD THING. I am now aware that things are happening and I just need to step back and let God do his work.
I have been very busy and have a 'to do' list I work on everyday. I have had lots of people asking about fundraising info and if anyone has any ideas please call or email me. I have set up an account for the Evan Holley Medical Fund at Centric Federal Credit Union. We have a chicken Spaghetti dinner/Rummage Sale that will take place at Trinity Baptist church. I will let everyone know as soon as we schedule a date. We also will be selling hamburger plates at Wal-Mart. As soon as I speak with Wal-Mart personnel to set a date I will let you know. I am waiting on order forms to see Butter Braids so if you are interested in helping sell these please let me know. You can visit their website to get more info. I am waking up each day with new ideas and everyday God sends someone my way with new ideas of information to help Evan. It is amazing how things just happen. I don't want to spend my life wasted . I want to wake up each day and find a way.........
The total amount of Evan's surgeries is approximately $80,000.00. This is a round bout figure and the doctors in California that are going to perform the surgeries are currently working with the hospital/anethesiologist/hearing aid company to get us discounts. If it were not for Julie @ Dr Reinisch's office I would probably still be sitting at home crying and wondering how we could get this done. She has been a godsend!
Just last week I was thinking we would never get this done. Over the weekend I had thought of sponsors I would call to get gift cards/raffle items. One of the sponsors on my list was McKinney Honda. I went to work on Monday depressed and wondering just how I would ever do this. One of the people I met on Monday worked at McKinney Honda. TALK ABOUT A GOD THING. We talked and she has contacted me to offer help throughout the week. I cannot express the gratitude that I have. I went to lunch and was sitting in the parking lot thinking "ok God, if this is going to happen I will let it, but I need help." Julie from Dr Reinisch's office called ( I have not spoken to her in several months) and said she still had Evan scheduled for surgery in April. I explained to Julie that we did not have the money and I just got internet service so I could start researching programs to help with the expenses. She would not take no for an answer and said she would call me back in March. TALK ABOUT A GOD THING. I am now aware that things are happening and I just need to step back and let God do his work.
I have been very busy and have a 'to do' list I work on everyday. I have had lots of people asking about fundraising info and if anyone has any ideas please call or email me. I have set up an account for the Evan Holley Medical Fund at Centric Federal Credit Union. We have a chicken Spaghetti dinner/Rummage Sale that will take place at Trinity Baptist church. I will let everyone know as soon as we schedule a date. We also will be selling hamburger plates at Wal-Mart. As soon as I speak with Wal-Mart personnel to set a date I will let you know. I am waiting on order forms to see Butter Braids so if you are interested in helping sell these please let me know. You can visit their website to get more info. I am waking up each day with new ideas and everyday God sends someone my way with new ideas of information to help Evan. It is amazing how things just happen. I don't want to spend my life wasted . I want to wake up each day and find a way.........
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